Dallas was born full term and full of surprises. Unbeknownst to us, she was born incredibly sick. Within an hour of her birth, we were told she wouldn’t make it. She was quickly transferred to Medical City Children’s and placed on ECMO life support. Her initial stay in the hospital was just under 6 months and in that time she coded requiring chest compressions, oscillating ventilator several times, sepsis twice, reoccurring chylothorax, internal bleeding, chronic respiratory failure, immunodeficiencies, dysphagia, and was given 3 chest tubes, a heart drain, a trach, vent, and g-tube. That was just the beginning. We now know that Dallas has exotropia by hypoxic brain injury, hypoplastic enamel, low muscle tone, keratosis pilaris rubra, hearing loss in both ears, epilepsy, and a mediport due to poor vascular access. She can only stand and walk with assistance. Despite all the poking and prodding, Dallas Jane is the happiest baby you will ever meet. She even smiles in her sleep! She enjoys spending time with her brother and sister, Dax and Presley, as well as her cats, Jewels and Tom Hardy. Dallas loves unicorns, My Little Pony, Cocomelon, and anything that lights up and plays music! Everything about our little girl amazes us. Most recently, she got hearing aids about 3 months ago. In that time, she went from barely speaking, to speaking in three-word sentences! We face several challenges as a family, like getting dirty looks from people and going from two incomes to one (that has definitely been rough), but the biggest impact has been on our older two children. Watching their baby sister fight for her life every day, with over twenty hospitalizations, 911 calls, etc. has definitely taken its toll. Therapy has been great, but we have found that if we can make them feel empowered in emergency situations it helps take their fear down a level. Both of our older children are now proficient in ALL of Dallas' cares. This has proven to be very useful when my husband has been out of town and we have no nurse. Unfortunately with little to no immune system, we can't take Dallas anywhere. Her last "non doctor" outing was Easter a year ago, and she ended up in the PICU for a week. Dallas has overcome so many things it's hard to narrow it down to a few. We have been told more times than I can count that she wasn’t going to make it. Her doctors call her a medical miracle. She is a warrior and fights with all she has. Dallas Jane is the perfect piece to the Parker 5 puzzle. We thank God every day for her, and for trusting us with a miracle. She is everything we never knew we needed!
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